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January 23, 2010
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Sometimes I wish the rash had come. It would have gone, and maybe, just maybe, the pain would have too. At least, then, I would have known why. Why it hurts, every day. Why my boyfriend can't hold my head. Why I can't ride my bike anymore, when that used to be my favourite thing. Why I gel my hair away from my cheek. Why I avoid my glasses. Why I don't even go outside for fear of the wind. Instead, it hurts, more every day. The only thing that helps is the drugs. Two pills in the morning. Two at noon. Three in the evening. Plus everything else to keep me healthy, so ten pills in the evening and two puffs on the inhaler. It's not going away. The pain will always be there. So bad sometimes that I pull over and pop a couple Tylenol and wait for the pain to fade to the background so I can see the road again. It gets worse now. With no cure but more pills, it makes more and more sense that others nicknamed it the suicide disease.
:iconlost-angle:
When something happens, without a doubt, I imagine the worse. This is about Trigeminal Neuralgia. I was diagnosed with it a week ago. The rash I mention is Shingles which may yet come (in the next few days).

TN has no known cause and no known cure. TN is pain in the Trigeminal nerve of the face on one or both sides. It has been associated with several other conditions (including celiacs disease which runs in my family). The pain that is associated with TN can be caused by many other things including Shingles. TN gets worse over time to the point where men will refuse to shave and people will refuse to even go outside for fear that the wind will touch their face.

For me, the pain is centered in my eye, center cheek and ear on the right side. I use a blanket as a pillow so I can position it so it only touches my forehead and neck. And my boyfriend's made me cry just by wiping his hand across my face.

EDIT!!
The pain was caused by a combination of a bacterial infection in my sinuses pinching the nerve and my wisdom teeth coming in impacted. I did a course of amoxacillin and the pain almost completely vanished. I'm getting my wisdom teeth removed in March, but until then the pain is off and on and getting worse in my jaw, teeth and a little in my cheek. In other words, I don't have TN, thankfully.
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:iconquashii:
It's wonderful that your pain is almost fully depleted, and I hope it all goes away.

I've had my pain for at least two years, but for that whole time they said it was my teeth. I had five teeth pulled, and nothing helped. I've been scheduled for an MVD procedure next month, and that's supposed to get rid of my TN.
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:iconlost-angle:
`lost-angle Mar 27, 2010  Hobbyist General Artist
I hope it helps you. I read that TN often gets misdiagnosed for the teeth (I know when my pain was last fading, it started to show in my teeth, which was actually caused by my wisdom teeth pushing in, not the TN). I'm sorry it took so long for you to get diagnosed properly. I also read that quick treatment is more likely to make it go away or fade to a manageable level. I hope it's not too late.

:tighthug:
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:iconquashii:
:hug:

It's just that it's such a rare condition, especially in someone my age. And the pain is so severe, no wonder it's called 'the suicide disease.' Thank you for your sympathy.

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:iconlost-angle:
`lost-angle Mar 27, 2010  Hobbyist General Artist
exactly. I hope the pain gets better for you. :hug:
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:iconquashii:
My.

I was just recently diagnosed with Trigeminal Neuralgia, and it really is a terrible thing.
No one else really understands the pain TN brings unless they experience it themselves, y'know?

Even though you don't have it, your situation is very similar, and I am extremely sympathetic and hope your pain completely goes away very soon.
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:iconlost-angle:
`lost-angle Mar 26, 2010  Hobbyist General Artist
It took about a month and a half for the neuralgia I experienced to go away. I kept up with the gabapentin and didn't lapse until I thought the pane had started to fade. Since I had my wisdoms out, I've had pain again, on both sides of my face. My sister and mom thought it might have been muscular. But I took a single gabapentin (from before, I figured it couldn't hurt if that wasn't the problem) and the pain's almost completely gone again.

I feel your pain, and I hope that, like me, your neuralgia will fade away with time, as it does on occasion.
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:iconportheiusj:
~portheiusJ Feb 19, 2010  Student Artist
I wish I could offer you more comfort than just this, but it will have to do.
:hug:
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:iconlost-angle:
`lost-angle Feb 19, 2010  Hobbyist General Artist
I should edit the comments... I have 4 impacted wisdom teeth and a bacterial infection that caused the nerve pain... with the bacterial infection taken care of, the pain's almost completely gone. But until I get my wisdom teeth removed, I will have increasing pain in my jaw and teeth >< but don't worry, I'll be fine.
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:iconportheiusj:
~portheiusJ Feb 19, 2010  Student Artist
Okies. :hug:
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